- Vancouver parent challenges unauthorized archiving of infant’s genetic blueprint
But the newborn screening procedures, which exist across North America and most of the developed world, have run afoul of privacy advocates because the genetic material collected from infants when blood is drawn is routinely used for other purposes, chiefly medical research.
Millions of infants’ blood samples – along with their names and birthdates – are stored on information cards in laboratories across Canada. What has riled civil libertarians and privacy advocates is that parents aren’t told that their babies’ genetic blueprint will be stored indefinitely, and perhaps used for research purposes.
Read all of it.